Preparing for Not Accepting Vitiligo
Preparing for Not Accepting Vitiligo holds a special place with us because it was the first reading material we developed, designed and delivered at The Vitiligo Way. The need for the text was realised after noticing some key themes in the vitiligo community. These themes were not something that we invented ourselves. Rather they were discovered during conversations with over 150 people with vitiligo and we felt compelled to do something about the contradictions.
1. People lie about their acceptance: In the initial phase of conversation with individuals there was always a sense of posturing and trying to show strength about their condition. “I have long accepted my marks as part of me and love them” “I don’t wish for my marks to go now” “I am way past trying to fight it now” these positions were quickly shown to be false when the dialogue went deeper than the surface level small talk and a clear non accepting attitude was revealed.
2. People have not had anything to guide them through non acceptance: When an individual eventually decided to not accept their condition. There were no resources to show them a correct , mature and responsible form of non-acceptance. Fake spirituality and social media posturing had made it impossible for the individual to even consider the option and they have had absolutely no reference for what healthy non acceptance looks like.
3. Pretending to accept vitiligo prevented people from investigating vitiligo: We quickly realised that our mission to make a massive contribution to vitiligo investigation depended entirely on the people deciding to be open minded and investigate their condition. The false attitude of accepting it did not help our cause.
Ultimately the document was a wild success and directly resulted in people reconsidering their relationship with vitiligo. This is why we are actively working on a second edition with even more resources for the person who resonates with the school of thought it suggests.
“To take action quickly with no plan is an invitation to failure. You may feel motivation to do something right now but have you considered all the facts before you begin? Where is your map to navigate this new and unexplored terrain as you renegotiate your relationship with vitiligo? To give you a good starting point is the intention of this PDF.”
